Family Centered Care Project
Partner: SETHU, Goa, India
Goals: Help over 2,000 children with developmental delays to receive family-focused transdisciplinary support and empower their families to enhance their progress, foster their strengths and enable them to achieve their potential. Family-Centered Care will ensure that healthcare is planned around the whole family, in which all members are recognized as partners and active decision-makers.
Period: 36 months starting March 2021
Investment: Project size $200k, of which Self Reliant India is financing $100k
Objectives
- Develop Sethu as a resource center and model for FCC in Goa
- Provide a transdisciplinary family centered service to identify, diagnose and treat complex and diverse developmental disabilities and behavioral health issues affecting children and adolescents
- Extend professional skills in the area of NDD, by training staff of health facilities, schools and community agencies.
- Build awareness and strengthen advocacy for developmental and behavioral conditions by giving opportunities for the voices of children and families to be heard.
- Incorporate FCC into Sethu’s programmes of service, training, advocacy and research as follows:
Service
Training
Advocacy
Research
- Offer services for assessment and diagnosis of children with disabilities, taking full cognizance of the expertise of families
- Implement culturally relevant models of care
- Incorporate the needs of families in all training programs for them
- Train health and education professionals in the importance and relevance of family centred care
- Amplify the voices of children with disabilities and their families
- Encourage families to use their power to influence practice and policy in disabilities
- Study the levels and processes of family centred care, identify best practices and gaps and develop a plan of action for improvement
- Measure the outcomes and impact of family centred services and training.
Activities
- Centre based transdisciplinary service for children and young people with developmental and behavioral challenges
- Conduct a baseline assessment of the present situation of family focused service delivery at Sethu to identify lacunae and prepare a time-bound plan to bridge these gaps.
- Monitoring and review of the progress towards creating robust family centred policies and practices at Sethu
- Strengthen partnerships with parents and families through better communication and planning activities incorporated into clinical practice
- Develop family centred protocols and operating procedures which can be shared with other child development institutes for their use
- Conduct training programs in disability and FCC for families, health professionals, community child care workers and other organizations
- Build and develop our outreach via advocacy and awareness by creating visual content for FCC for digital media
Expected Outcomes
- Sethu is a resource centre offering services, training, advocacy and research in FCC
- Transdisciplinary services provided to 1500 children per year with NDD and behavior challenges (including new registrations and follow-ups).
- Development of a parent resource group at Sethu, closely involved in advocacy work, decision making, policy development and strategic planning of the organization
- Development of family friendly advocacy and awareness materials in child development to build outreach and influence policy
- Early referral of children with NDD by health care professionals, schools and other institutions involved in their care
- Training of community child care professionals leads to implementation of family centred practices
Self–Reliant India is a Catalytic leverager for NGOs in developing Countries, working to make Developmental Delay children become independent adults!
Sethu’s mission is to be a bridge between children and their families, schools and communities to foster their overall development through awareness, assessments, therapy, educational initiatives, training and capacity building in the community.
“The discussion is for information purpose only and should never be used for diagnosis. Please consult a certified medical processional for diagnosis.”